5/15/2022 - We were often asked if we were journaling during Bob's illness with Frontotemporal Dementia. Who had time? After he passed, our primary physician heavily encouraged my mom to write our story. There was so little known about FTD at the time. Once we committed, we made a goal to help one other family. As we celebrate the book turning 15 years old, we can proudly say that it is available all over the world in print, e-book, and audiobook; numerous families have reach

4/7/2022 - We lost Bob 16 years ago today. As horrific as FTD is, it's incredible to see the advancements made in research and awareness in the 18 years or so since his diagnosis, thanks to the great work of The Association for Frontotemporal Degeneration. Marie and Michelle donate to AFTD several times a year, but always on this anniversary. #endFTD

It's FTD Awareness Week! Thank you for watching today's short video. #endFTD #thinkFTD

It's FTD Awareness Week! #endFTD #thinkFTD

It's FTD Awareness Week! #endFTD #thinkFTD

It's FTD Awareness Week! #endFTD #thinkFTD

It's FTD Awareness Week! #endFTD #thinkFTD

It's FTD Awareness Week! #endFTD #thinkFTD

It's FTD Awareness Week! Thank you for reading our posts each day. #endFTD #thinkFTD

Don't forget to add #endFTD to your social media posts this week! Here are a few samples that we've used.

It's World FTD Awareness Week! The Today Show featured a caretaker and physician this morning. Check it out here! #endFTD

Thank you once again to Marie's niece/Michelle's cousin, Julie for walking in the York, PA Walk to End Alzheimer's (and other dementias) in Bob's memory! #endFTD If you would like to make a donation, please visit here!

FTD is among the forms of dementia targeted by US Congress for a cure by the year 2025. #endFTD

World FTD Awareness Week brings ten countries from across the globe together in the fight against FTD. #UnitedStates #endFTD

FTD’s course runs from 2 to more than 20 years. On average, death occurs 8 years from the onset of symptoms. #endFTD

On average, it takes 3.6 years from the onset of symptoms for diagnosis, leaving families in the dark far too long. #endFTD

More than half of behavioral variant FTD cases are first misdiagnosed as a psychiatric condition. In our experience, FTD was first mistaken for depression and/or marital problems. #endFTD

FTD presents with dramatic changes in behavior, language, or movement—not memory loss. One thing Marie and Michelle miss most about Bob is his smile and sense of humor. #endFTD

Conservatively, there are 50,000 diagnosed in the U.S. alone. Marie and Michelle's husband/father, Bob Sykes, Jr, was among those facing FTD. #endFTD

FTD is the most common dementia for people under 60. Today we’re raising awareness in honor of Bob Sykes Jr. #endFTD